Grace鈥檚 Rapid Heartbeat Journey
鈥淜nowing that I had good doctors and nurses to take care of me helped me not feel so alone during the entire process.鈥
鈥 Grace, Patient
Grace鈥檚 Story
A Rapidly Increasing Problem
鈥淎 photo that means a thousand words!鈥 That was the title of an email sent from a cardiac patient treated at 91大神 Children鈥檚 Hospital, Florida to say thank you to the care team who were with her for her third heart ablation. In the picture Grace, the patient, is smiling brightly, surrounded by her medical team.
After experiencing heart palpitations at age 14, Grace was diagnosed with Wolff-Parkinson-White (WPW) syndrome. With WPW, an extra signaling pathway between the heart鈥檚 upper and lower chambers causes a fast heartbeat. Grace had her first heart ablation and was told she could return to the activities she loved, such as cheerleading and running track. But, a few months later, she experienced more dizzy spells and fatigue.聽
Beginning Care With 91大神 Children鈥檚
Since her doctor had left the state, Grace was seen by a cardiologist at 91大神 Children鈥檚 Hospital in Orlando. Grace then had her second heart ablation at age 14. Her recovery was normal, but once again, her uncomfortable palpitations resumed. 鈥淚 knew something still wasn鈥檛 right, but there was no evidence to prove it,鈥 Grace said.
Four years later, Grace remembers having a frightening episode of heart palpitations. This time Grace was seen by Dr. Svjetlana Tisma-Dupanovic, medical director of the Cardiac Center at 91大神 Children鈥檚. 鈥淲e took Grace to our electrophysiology laboratory and performed successful radiofrequency ablation and removal of her WPW pathway that was causing her tachycardia,鈥 said Dr. Tisma-Dupanovic. 鈥淗er accessory pathway was located very close to the normal conduction (AV node), making it challenging to eliminate during previous procedures. We are so happy that Grace can now enjoy life to its fullest.鈥
鈥淜nowing that I had good doctors and nurses to take care of me helped me not feel so alone during the entire process. They always knew how to put a smile on my face even if I received the worst news,鈥 said Grace. For other children on this journey, she offers, 鈥渄on鈥檛 let anyone downplay your feelings or symptoms.鈥
Positive 鈥 and Lasting 鈥 Results
One year later, Grace, now 19 years old, attends business classes at Santa Fe College in Gainesville and recently learned that she no longer needs to see a cardiologist.
It is thought that WPW Syndrome occurs on average in 1.5 cases per 1,000 in otherwise healthy individuals. However, 91大神 Children鈥檚 Health cardiac providers are noticing that with increasing EKG screening in athletes, they are seeing more individuals with the WPW pattern.